Coalition for Collaborative Care: One Year On
The Coalition for Collaborative Care (C4CC) is a national partnership of 47 organisations in health and care, including many of the medical royal colleges, health charities and key community sector organisations. Launched a year ago, and modeled to a certain extent on the Think Local Act Personal Partnership, C4CC and its partners want to see big improvements in health and well-being for people with long term conditions and their carers and much more equal and effective partnerships between people and professionals. For this to happen we need to see more of what we are starting to call the ‘three Cs’:
- co-production with people who use services
- building strong community-based supports through community development and developing peer support and support for self-management
- better conversations between health professionals and the people they support, through integrated, person-centred care and support planning.
The C4CC aims to:
- Work to make sure that person-centred approaches are at the heart of important developments that will show the way for the health, care and well-being services of the future
- Support and help grow a mass network of people and groups working to deliver person-centred support and co-production – we now have 1,800 ‘members’ and group of 29 people with lived experience who work with us as a co-production group
- Work with our partners and other key organisations to “create the conditions” that make person-centred care and support possible – this means: the evidence needed; training and development of workers and community development.
C4CC is hosted by NHS England and run by a small ‘hub’ team of 6 staff. The team’s role is to coordinate, facilitate and bring people together. The partnership is Co-chaired by Fiona Carey from the co-production group and Nigel Mathers from the RCGP. C4CC is attempting to have a large impact with limited central resources. We are aiming for the maximum multiplier effect possible. Since our formal launch at the end of 2014 we have combined a development phase – growing the partnership and positioning ourselves for impact - with the beginnings of direct activity where opportunity and capacity has allowed. Going forward, the emphasis will now be on stimulating, steering and informing other’s activity, especially C4CC partners and members. We are also working very closely with TLAP and jointly on some work, including the support to the Integrated Personal Commissioning Programme, Building Community Capacity events for the Vanguards and further dissemination and materials to support TLAP’s Care and Support Planning tool.
The information below gives a bit more detail of the mind of work we are involved in. We would welcome a blog from Ray or yourself about the role of ADASS in the partnership and how we can really begin to tackle system change, achieving true integration, through TLAP and C4CC and the joint efforts of their partners.
Catherine Wilton, C4CC Deputy Director, January 2016
C4CC Work programme
Supporting people, practice and communities –
Supporting the practical work that people do to deliver person-centred care.
- We will look out for, help to share and sometimes help develop, tools that people can use to improve their practice. For example a tool to help professionals to improve the way they develop care and support plans.
- Where possible we will influence the tools that are being developed by helping to co-produce them with patients, people who use services and carers.
- We will develop website pages where tools can be shared. This will ensure that C4CC will be a central hub where people go to when they need to learn about care and support planning and person centred care.
- Look at what training and development is available to support organisations to improve the way they work and increase the amount of training that is available.
This work is split into 2 areas – Depth and Breadth
A number of programmes, which are led at a national level and are designed to change the way that services can be delivered. We have found that when C4CC gets involved we are able to spread our 3 Cs across these organisations while they are still developing their thinking and help them to plan to make them happen in practice. This can have a powerful impact on the way these programmes decide to deliver their work.
C4CC ran workshops for the Integrated Personal Commissioning sites. These were co-designed with C4CC group members from the beginning. We insisted that the local organisations that we worked with brought community organisations and patients representatives into the room with them. We made sure the workshops were run in a way that was accessible for all. C4CC played a lead role in getting the organisations involved in IPC to collaborate and to think about person centred care and care and support planning as a core part of their programme planning.
We will be supporting a programme of regional events with the Vanguards/ New Models of Care programme. These events are to help the 50 local vanguards to think about how they can “empower patients and communities”. We will help them work out what help they need to do this and influence the support they get in the future – including from our partners.
We have delivered regional events for partners and members and plan to do more, with partners. This will bring people into a space where they can learn about good practice and share ideas. It is also a place for moral support as sometimes the people who champion these agendas are working against a system which may not support this type of change.
We will do some matching so that partners or people who have experience of one area of work, will be matched with those who can help them – peer support.
We will look at technical options to help partners, members and the co-production group communicate with one another and share information/ good practice.
Creating the Conditions
Knowledge and Evidence
Making sure we have good evidence that can be used to prove that this approach can lead to better outcomes for people and is also cost effective. Also evidence about how to introduce person-centred care and support well
We are working with a programme called Realising the Value which is pulling together evidence about the benefits of person centred care, testing this out in some places and developing practical tools based on this. We will make sure the evidence and tools get into the hands of people who need them
We work with our partners to look at what evidence they have and share this with other organisations in a range of ways – blogs, webinars, newsletters, social media, workshops etc.
We are developing a resource page on our website that people can use to link to the best evidence about the benefits of person centred care and to useful tools and resources.
Thinking about the workforce needed to deliver person-centred care for people with long-term conditions
- We are recruiting more partners and members who lead on workforce matters which will allow us to influence workforce strategies as they are being developed
- We will share information about good workforce initiatives
- We will help our partners to develop good approaches for training and development of professionals
We have worked with the Royal College of General Practitioners on the development of GP training. We have published a briefing and discussion paper on what might be the main issues in having a workforce which is equipped to deliver person-centred care and what could be done to improve things – this will help us decide what to concentrate on.
We have worked with two partners – the Health Foundation and Health Education England to do research and then bring together important workforce and professional bodies to start to plan what could be done to make improvements
C4CC is becoming established as a credible organisation that can influence NHS England and Department of Health policy at the earliest stage of policy development and a number of our partners themselves develop important guidance and influence others. Part of our role is to help to join up some of the conversations going on in different places to make a bigger impact.
Following mapping and exploration, we have published a discussion and briefing paper on what some of these “levers” might be and how they could be influenced. These include things like the ways that NHS finances work, things local organisations have to check, rules on commissioning etc. Following responses we will plan what C4CC and its partners should do next. In the meantime we are making links and connections to influence initiatives as they arise.